Its Rare Disease Day 29th February

On the 28th February  every year marks Rare Disease Day.  This year its on the 29th February - Leap Year.  I have two - Tuberous Sclerosis and Lymphangiomiomatosis.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I know …

Tips on traveling with a chronic illness

    In less than 2 weeks Muriel and I will be heading to Europe.  To be more specific Portugal and Spain.  Paula will be home recuperating from a knee replacement. As most of our readers know that I have many chronic illness'.  So  travel takes a bit more effort and forward planning.  I just …

Vienne France

    We spent an afternoon sailing along the Rhone as we headed to Vienne.  We could eat as much as we liked of the "Calorie Free" Ice Cream after lunch.     Then Muriel, Tania, Peter and I did a tour of the Wheelhouse with Captain Tony and Pierre about river navigation. Captain Tony …

La Boheme – on Sydney Harbour – Mrs Macquaries Point

Last week I flew to Sydney from Melbourne to catch up with my sister Paula, daughter Sarah and nieces Rachael and Penny.  Paula, Penny and Rachael flew to Sydney from Perth. We arrived on the Tuesday, I flew via Virgin and Paula and crew flew Qantas.  I hadn't told Paula who I was flying with …

“You have a collapsed Lung”

February 28th is Rare Disease Day all around the world. Today I am sharing with you a guest post - Lauren who has Lam -Lymphangiomiomatosis.   Thank you so much Lauren for sharing.   “You have a collapsed lung”. I looked at my husband Chris, whose face went white. “What does that mean?” he asked. …

Sunshine Blogger Award

I have been nominated by Esther from https://richerfortravel.wordpress.com/home/  who I have had the pleasure of meeting up through a wonderful support group on Facebook.  Esther is a fellow traveler and also chronic illness warrior. Please head over to her page and check out her travels to Italy and her latest post to Lego Land!  To be nominated by …