Its Rare Disease Day 29th February

On the 28th February  every year marks Rare Disease Day.  This year its on the 29th February - Leap Year.  I have two - Tuberous Sclerosis and Lymphangiomiomatosis.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I know …

Goodby 2019 and Hello 2020

Sitting here watching the devastating fires happening in Australia makes me realize how lucky I am.  Im in my lounge room with the TV on, lap top on my lap,  sun shining with a blue sky while others are on the beach or in boats shielding themselves from the smoke and flames.  I have friends …

Tips on traveling with a chronic illness

    In less than 2 weeks Muriel and I will be heading to Europe.  To be more specific Portugal and Spain.  Paula will be home recuperating from a knee replacement. As most of our readers know that I have many chronic illness'.  So  travel takes a bit more effort and forward planning.  I just …

Happy New Year – 2019

Wow...its 2019 in this part of the world.  A lot of you are still in 2018.  So this year brings a bit of travel for us. A couple of days with my sister Muriel and her son Christopher and his girlfriend.  I have to be quiet where we are going as I don't think Muriel …

Vienne France

    We spent an afternoon sailing along the Rhone as we headed to Vienne.  We could eat as much as we liked of the "Calorie Free" Ice Cream after lunch.     Then Muriel, Tania, Peter and I did a tour of the Wheelhouse with Captain Tony and Pierre about river navigation. Captain Tony …

La Boheme – on Sydney Harbour – Mrs Macquaries Point

Last week I flew to Sydney from Melbourne to catch up with my sister Paula, daughter Sarah and nieces Rachael and Penny.  Paula, Penny and Rachael flew to Sydney from Perth. We arrived on the Tuesday, I flew via Virgin and Paula and crew flew Qantas.  I hadn't told Paula who I was flying with …

“You have a collapsed Lung”

February 28th is Rare Disease Day all around the world. Today I am sharing with you a guest post - Lauren who has Lam -Lymphangiomiomatosis.   Thank you so much Lauren for sharing.   “You have a collapsed lung”. I looked at my husband Chris, whose face went white. “What does that mean?” he asked. …

Lam Lung Disease and Tuberous Sclerosis

  Its Rare Disease Day on the 28th February so I wanted to share a bit more about the  two rare diseases that my youngest daughter and I have.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I …

Sunshine Blogger Award

I have been nominated by Esther from https://richerfortravel.wordpress.com/home/  who I have had the pleasure of meeting up through a wonderful support group on Facebook.  Esther is a fellow traveler and also chronic illness warrior. Please head over to her page and check out her travels to Italy and her latest post to Lego Land!  To be nominated by …

Sick? On holidays – Oh No….

I woke up in the morning and I didn't feel right.  I couldn't put my finger on it.  We went to breakfast.  I only ate a little as I was starting to feel queasy.  We were heading to a Truffle Farm and then to the town of Grignan with a tour of the castle.  A …