Tips on traveling with a chronic illness

    In less than 2 weeks Muriel and I will be heading to Europe.  To be more specific Portugal and Spain.  Paula will be home recuperating from a knee replacement. As most of our readers know that I have many chronic illness'.  So  travel takes a bit more effort and forward planning.  I just …

Invisible in Melbourne. WHAT’S IT LIKE TO LIVE HERE WITH CHRONIC ILLNESS?

Sheryl from https://www.achronicvoice.com is hosting an Invisible Link Up.  When Sheryl tagged me in this I was like yes please I will do that.  A great way to learn what it is like for others living around the world with a chronic illness.  I have several chronic illness along with a couple of rare diseases.  I have learnt …

This is or that – Tag your it

I am very honored to be nominated to do This or That by the blog  https://vibealittle.com  Please go over and check out the blog. I am also a bit slow in doing this as it was nearly a month ago that I was nominated. Yes slap the back of the hand oh so gently (my …

Lam Awareness

The month of June is coming to a close.  June is Lam Awareness month.  Sarah from https://www.travelbreatherepeat.com has done an amazing awareness program each year for the month of June.  Below is my piece this year.  Do go over to her blog and check them out.   https://www.travelbreatherepeat.com/physical-therapy-with-lam/   Thank you for reading and following.     …

Fitzroy Gardens and the MCG Melbourne.

On Saturday I made my way into the city to catch up with a friend who was visiting from Perth, Western Australia. Such a bleak cold Saturday so what does one do apart from staying indoors and keeping warm. We got on a tram and made our way to the MCG - Melbourne Cricket Ground. …

World Wide Lam Awareness Month

  Can you say Lymphangioleiomyomatosis? Let me break it down for you - Lymp -angio -leio- myo -ma - tosis.  What a mouth full.  Us Lammies and the medical profession call it Lam.  So much easier don't you think! What is Lam  or Lymphangioleomyomatosis you ask?  Here is the link to the Australian Lam organisation. …

May 15th – TSC Global Awareness Day

Today is May 15th TSC Global Awareness Day…

3 Sisters Abroad

Today is TSC Global Awareness Day.  You might ask what is TSC?  It stands for Tuberous Sclerosis Complex.  Tuberous Sclerosis affects the eyes, skin, brain, kidneys, liver, lungs, and some also have epilepsy.

I have Tuberous Sclerosis Complex and so does my youngest daughter Jennifer. I was officially diagnosed when she was 1. TSC in my case was a mutant gene, however once you have this rare disease the chances of having a child with TSC is 50/50. 1 in 2 chance of having a child with TSC.  I do remember my parents being tested which came up clear.  I am the youngest of 4 so the chance of my sisters or brother having TSC was ruled out when my parents tests came up clear.  This meant something happened with the genes when i was conceived.  When I was 6 or 7 the doctors removed some facial lumps off my…

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Things I always carry in my bag

The Wine!

The last few days I have read two wonderful posts on "Things I always carry in my bag" and I thought to myself why not do a post on this.  The Happiest Pixel and Cheila's Blog is where I first read this post. How on earth do some men get away with just carrying a wallet in a …

Viviers – Ardèche Region

  By the time everyone came back from the Truffle Farm and Grignon Castle I was bursting to get out and do some exploring.  Being sick is awful, double that when away on holidays.  Poor Muriel, as soon as she came back I was like "come on let's go exploring in Viviers. " A quick …

6 Month Update on my Knee Injury

So its been 6 months since I initially injured my knee on the flight home from Paris.  6 months!  Where has the time gone? I am now going to physio twice a week.  Each time I go I am put through my paces.  30-45 mins of intense workout. Waiting on referral to do some physiotherapy …