May 15th – TSC Global Awareness Day

Today is May 15th TSC Global Awareness Day…

3 Sisters Abroad

Today is TSC Global Awareness Day.  You might ask what is TSC?  It stands for Tuberous Sclerosis Complex.  Tuberous Sclerosis affects the eyes, skin, brain, kidneys, liver, lungs, and some also have epilepsy.

I have Tuberous Sclerosis Complex and so does my youngest daughter Jennifer. I was officially diagnosed when she was 1. TSC in my case was a mutant gene, however once you have this rare disease the chances of having a child with TSC is 50/50. 1 in 2 chance of having a child with TSC.  I do remember my parents being tested which came up clear.  I am the youngest of 4 so the chance of my sisters or brother having TSC was ruled out when my parents tests came up clear.  This meant something happened with the genes when i was conceived.  When I was 6 or 7 the doctors removed some facial lumps off my…

View original post 826 more words

3 Replies to “May 15th – TSC Global Awareness Day”

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.