May 15th – TSC Global Awareness Day

Today is May 15th TSC Global Awareness Day…

3 Sisters Abroad

Today is TSC Global Awareness Day.  You might ask what is TSC?  It stands for Tuberous Sclerosis Complex.  Tuberous Sclerosis affects the eyes, skin, brain, kidneys, liver, lungs, and some also have epilepsy.

I have Tuberous Sclerosis Complex and so does my youngest daughter Jennifer. I was officially diagnosed when she was 1. TSC in my case was a mutant gene, however once you have this rare disease the chances of having a child with TSC is 50/50. 1 in 2 chance of having a child with TSC.  I do remember my parents being tested which came up clear.  I am the youngest of 4 so the chance of my sisters or brother having TSC was ruled out when my parents tests came up clear.  This meant something happened with the genes when i was conceived.  When I was 6 or 7 the doctors removed some facial lumps off my…

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