Klippel Feil Syndrome (KFS) & Complex Migraines & Gastroparesis

Today is Rare Disease Day all around the world.  I would like to share with you a friend of mine Erin and her post for Rare Disease Day 2018.  Erin has an amazing blog over at https://achronicspoonful.wordpress.com/2018/02/27/rare-disease-day-february-28th/           The 28th of February is Rare Disease Day. It’s a day designed to raise …

Osteogensis Imperfecta & Lymphangiomiomatosis

28th February is Rare Disease Day around the World.  Please welcome Kat and her post about Lymphangiomiomatosis and Osteogenesis Imperfecta (OI).   Every year on the last day of February is Rare Disease day, globally. While every year of my life I acknowledge the day, I have never been involved in proceedings or shared my experience …

“You have a collapsed Lung”

February 28th is Rare Disease Day all around the world. Today I am sharing with you a guest post - Lauren who has Lam -Lymphangiomiomatosis.   Thank you so much Lauren for sharing.   “You have a collapsed lung”. I looked at my husband Chris, whose face went white. “What does that mean?” he asked. …

Lam Lung Disease and Tuberous Sclerosis

  Its Rare Disease Day on the 28th February so I wanted to share a bit more about the  two rare diseases that my youngest daughter and I have.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I …

Grignan Castle – Château de Grignan

              Grignan Castle Or as it is known – The Chateau de Grignan is built on a hilltop with the small village built around it. At present the number of people living here is just over 1,500. The village dates back to the 11th century with the walls being …

Sunshine Blogger Award

I have been nominated by Esther from https://richerfortravel.wordpress.com/home/  who I have had the pleasure of meeting up through a wonderful support group on Facebook.  Esther is a fellow traveler and also chronic illness warrior. Please head over to her page and check out her travels to Italy and her latest post to Lego Land!  To be nominated by …

The Entertainer Blogger Award

      A huge thank you to Lorelle from a mindful traveler for the Entertainer Blogger Award.  It's such a huge honor to be nominated by a fellow blogger.  Lorelle has an amazing blog full of travels to places I have yet to visit.  You can also find hints and tips and ....Food. a blogger after my own …

Ever had a Truffle – a black Truffle?

Ever had a truffle – or a black truffle. The area of France known as the Dordogne produces 80% of these truffles – called Tuber melanosporum or The Perigord Diamond. They have a subtle aroma and an earthy flavour and reminds every one of rich chocolate or so they say. Since the best times to …

Sick? On holidays – Oh No….

I woke up in the morning and I didn't feel right.  I couldn't put my finger on it.  We went to breakfast.  I only ate a little as I was starting to feel queasy.  We were heading to a Truffle Farm and then to the town of Grignan with a tour of the castle.  A …

Be prepared to be amazed at the Pont du Gard!

After lunch and a few cold drinks - it was very hot down in the south of France last August.  There were two afternoon excursions a trip to the Pont du Gard Roman Aqueduct bridge or Chateauneuf du Pape: Town and vineyard tour with wine tasting.  MMMH choices...an old bridge or wine.   The bridge …