1 Get your doctor to refer you to a respiratory doctor who knows about Lam.
2 Have a high-resolution CT Scan. As X-rays often show the lungs to be normal.
3 Abdominal CT Scan – It may show up that you also have renal angiomyolipomas – fatty kidney tumors.
4 Lung function tests (spirometry) – Lung function tests are not to diagnose Lam but to measure the severity of Lam. Regular lung function tests once diagnosed are used to monitor the process of Lam.
Here are a few links of Lam Organizations around the World.